There is scientific consensus that the Zika virus causes microcephaly in newborns, and recent case reports also suggest a link between Zika and other neurological disorders, such as myelitis or brain abnormalities. The Zika virus is spread primarily through the bite of an infected mosquito of the Aedes species and sexual intercourse, both of which entail significant action on behalf of the patient to prevent the disease, therefore presenting a significant opportunity for patient-centered outcomes research (PCOR) and comparative effectiveness research (CER) to have an impact. Local transmission has been reported in various countries and U.S. territories, including Puerto Rico.
At Impactivo, we are committed to the health and well-being of women and children. Because of this, Impactivo obtained a PCORI EAIN Award to aid in the development of fostering future research in maternal/child health as it relates to Zika disease, which is essential for addressing health disparities in affected areas.
The Blueprint for the Future Conference convened in March 2017. The event brought together researchers, academics, patients, healthcare professionals, and community groups with the purpose of disseminating evidence-based practices and educating participants on research design and methodology related to patient-centered outcomes research, clinical comparative effectiveness research, and community engagement. Clusters of stakeholders were grouped into “research communities” around specific core areas affected. The conference culminated in a Zika-related PCOR/CER research agenda that was shared with all participants and stakeholders.
You may access the research agenda and conference proceedings in the links below.